Workshop on Nepal Thyroid Eye Disease Registry

The Nepalese Society for Oculoplastic Surgeons (NESOS), in collaboration with the Nepal Health Research Council (NHRC) and with technical and financial support from the Fred Hollows Foundation (FHF) and Tilganga Institute of Ophthalmology (TIO), completed a workshop on the Nepal Thyroid Eye Disease Registry (Nep TED) on 27th July 2024 at the Royal Singhi Hotel, Durbar Marg. Nep TED, a collaborative initiative involved over 51 hospitals and eye clinics across Nepal, aims to establish a comprehensive database for TED patients in the country. This initiative seeks to provide accurate information on the disease burden and enhance the quality of care for TED patients. The vision of NESOS was supported by an expert advisory team, including Prof. Dr. Sanduk Ruit, Prof. Madanmani Upadhaya, NESOS Founder President Prof. Rohit Saiju, NESOS President Dr. Sulaxmi Katuwal, NOS President Prof. Meenu Chaudhary, NNJS Chair Prof. Dr. Chet Raj Pant, Health Secretary Dr. Roshan Pokhrel, and DEAN President Prof. Dr. Robin Maskey. The one-day workshop on Nep TED marked the first physical workshop for the registry. It was organized during July being "Graves Disease Awareness Month", a term used worldwide. Graves disease is the major type of thyroid disorder which causes Thyroid Eye Disease. The workshop featured international expert and advisor to Nep TED, Prof. Dr. Kelvin Chong, who will share his extensive knowledge of Thyroid Eye Disease research in the Asia-Pacific region. National research expert Prof. Dr. Biraj Karmacharya will emphasize the vision of the registry. Dr. Sadikshya Bhattarai from NHRC and Miss Uma Kafle shared their expertise and discussed the challenges faced in working on the registry.